May, has been and gone now. It was NF awareness month and I fully intended on writing a whole post about living with NF1 and being informative and hopefully educate some people. But it hasn’t worked out that way. I’ve only written when I’ve been well enough, and when I’m well enough I usually want to go out and enjoy being well!

So I’ll just mark it with this link and a picture of my nails from last year.

NF isn’t easy to live with, I mean it took my sight and 2 years of my life as a kid to treatment for an optic nerve glioma. I just hope one day there is a cure. 🤞🏻 💙 💚

https://nervetumours.org.uk/what-are-nerve-tumours/what-is-nf1