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I love a good pun although I can’t take credit for that one! So, day three of training with my new Guide Dog… and there has been a slight change of plan. The usual hotel training environment didn’t suit the little pup in training, also I was nervous being away from home for such an…
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Willow As I embark on the next phase of my journey with my second Guide Dog. I want to spend a little time to share Willow with you all. Willow, my first Guide Dog, my soul mate. She has given and continues to give me so much. When I first lost my sight, my…
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Another new year is upon us… 2025! Its also exactly a year ago since I wrote last years new year post. My plan way back in January 2024 was to reflect on the goals I had set myself to see how many I had achieved. 2024 didn’t go the way I had ever imagined but…
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It has been a while, so I hope my writing is still up to scratch. I am so grateful to everyone who reached out to ask how I was because you were worried about me, or missed my writing. It didn’t go unnoticed. So, where have I been? Well…. In July I had a breakdown.…
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My scan results are back, and it’s positive news. ….and relax 😮💨
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So it’s (just over) halfway through the year. It’s been quite a long couple of days, with a trip up to London for a scan, and back again. in fact as I write this i am waiting for my scan and I am radioactive ☢️ Being blind as usual added a little extra complication to…
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Something I used to love and honestly did at least a couple of times a year before I got diagnosed was to o to concerts. I love everything about them, the atmosphere you get at a gig is unmatched. I was lucky enough to go to a gig last week, I saw Girls Aloud. A…
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So now I am six months through chemo, a quarter of the way, it has been hard but I have got here somehow. Before I started taking Mitotane I met with a doctor and nurse to discuss taking it, and so if I chose to do so I could give my consent. My only experience…
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So I made it! I talked in a recent blog post about there being an event that I wanted to attend, and that I was worried I wouldn’t be able to make it if I wasn’t feeling well, and I made it! So let me tell you about last weekend. I finally got to meet…
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May, has been and gone now. It was NF awareness month and I fully intended on writing a whole post about living with NF1 and being informative and hopefully educate some people. But it hasn’t worked out that way. I’ve only written when I’ve been well enough, and when I’m well enough I usually want…
The ACC diary 