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I don’t remember what we spoke about leaving the hospital. I just remember saying over and over “that’s big, really big” and the numbers, 10 to 12cm rushing round my head. It didn’t seem real. I had convinced myself that it was a Pheo and with no size indication until this point I just hadn’t even realised…
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It wasn’t long, and the appointment to meet with the endocrinologist was just days away. I was feeling slightly apprehensive, it just felt so uncertain, so unknown. It was scary to be honest. Id also begun to recognise since my appointment quite how often my heart would race. This wasn’t even when I exserted myself, sometimes I would just…
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Happy new year, to one and all. I am going to keep this post short and sweet. I’m starting this year off in an entirely different way to how I could have ever imagined. I didn’t expect to get diagnosed with cancer, I didn’t expect to have had major surgery, I didn’t expect to have…
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It was the last week of July. I had now had all the scans and had almost forgotten about them. Not concerned at all. Now I was not in employment, but also not looking at a six week course of radiotherapy, I decided to allow myself to have some time, to look for a job but also settle…
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The second MRI didn’t show much more than the previous one. Although they were able to confirm the ONG had no changes since 2014. Despite this, at a slight loss of what to do I think, my GP sent me to meet with a neuro oncologist to discuss a potential treatment plan. The potential of…
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A week had gone by with no improvement to my sight this was very unusual. I was feeling stressed by this point. Why had things not improved? Would things ever improve? What was happening? I still hadn’t returned to work, although I had very little sight before, this sudden reduction had hit me hard and my confidence was…
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Allow me to introduce myself. I am a 26 year old woman from the UK. I live with my partner, retired guide dog and three cats. I am registered blind (hence the retired guide dog) and play Ten Pin Bowling as part of my local blind social support group and as part of the wider…
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On the 10th October this year I was diagnosed with Adrenal cortical cancer. This blog is a way to document my journey and, as the name suggests, act almost as a personal diary. So come along for the ride.
The ACC diary 