adrenal cancer
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The following day was the last full day in France. We went to Land and Monkeys again for vegan pastry. This day was going to be busy so once we finished we had to go straight over to the meeting point for our guided tour of The palace of Versailles. We actually arrived a little…
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In December 2023, I was incorrectly advised to forgo taking my hydrocortisone for 24 hours, that lead me to have an adrenal crisis. This, along with the surgery and starting of chemo, bringing lots of trauma from my two years of IV chemo as a teenager, all caused me to lose a lot of confidence.By…
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What will your life be like in three years? That’s a hard question to answer when I live with a cancer that has about a 50% mortality rate. While it’s true that nobody knows exactly when they will die, it feels like quite a difficult topic for me. It’s something I’m working on. I find,…
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What is your favorite form of physical exercise? The honest answer is that I don’t know anymore. Pre cancer and pre the struggles with my mental health, I used to walk a lot, go to the gym, I loved my aqua aerobics class. I would go almost every day. But surgery, feeling so poorly and…
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Today marks two years since the surgery that changed my life. A lot has happened in those two years. Physically and mentally I’ll never be the same person because that day, the surgery changed me. How could it not. It changed me physically. I’ve never got back to my strength or fitness and mentally it…
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What is your favorite hobby or pastime? I have lots of hobbies. I play ten pin bowling, I play a blind sport called showdown, I like crafting, climbing and researching my special interests and I love writing this blog  But when I’m depressed I lose sight of all my hobbies. This weekend I saw…
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What are you doing this evening? Honestly I wish I could have something inspiring or enlightening to say. I wish I could make the first blog post in months one to get excited about, but truth fully I am doing nothing special. Today I had my blood test, that checks that my cancer markers are…
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This week has been busy, and it’s not even over yet. One of the things I had to do, was go to London for a hospital appointment… are we surprised? Since I stopped the chemo in July, the functioning of my remaining  adrenal gland needs to be tested. Mitotane, the chemo I was on,…
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The theme for this world cancer day is united by unique. Adrenal cancer is so unique that it’s not even given a mention in cancer circles. It’s rare 1 in a million people worldwide will be diagnosed annually. I have no interest in being unique, I just want to exist. I have seen people posting…
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It is a week ago today that I called off the match with little pup. I feel confident within myself that it was the right decision, but it is still a painfully hard one. I had to think with my heart and not with my head. I feel as though I am grieving a future…
The ACC diary 