cancerresearch
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Today is World Cancer Day, and for me, it’s a day of reflection. It’s been two years and three months since the surgery that saved my life—and changed it in so many ways. But it’s also more than ten years since I finished chemotherapy for a brain tumour in my teens. I’m still here to…
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What will your life be like in three years? That’s a hard question to answer when I live with a cancer that has about a 50% mortality rate. While it’s true that nobody knows exactly when they will die, it feels like quite a difficult topic for me. It’s something I’m working on. I find,…
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Today marks two years since the surgery that changed my life. A lot has happened in those two years. Physically and mentally I’ll never be the same person because that day, the surgery changed me. How could it not. It changed me physically. I’ve never got back to my strength or fitness and mentally it…
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I am not watching big brother, but it’s clear that lot of people do. I’ve been noticing something that’s a talking point for many people, and that is Trisha, and her cancer diagnosis. What I’ve seen is many people saying that “all she talks about” is her having cancer. People are saying it in a…
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The theme for this world cancer day is united by unique. Adrenal cancer is so unique that it’s not even given a mention in cancer circles. It’s rare 1 in a million people worldwide will be diagnosed annually. I have no interest in being unique, I just want to exist. I have seen people posting…
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So it’s (just over) halfway through the year. It’s been quite a long couple of days, with a trip up to London for a scan, and back again. in fact as I write this i am waiting for my scan and I am radioactive ☢️ Being blind as usual added a little extra complication to…
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So now I am six months through chemo, a quarter of the way, it has been hard but I have got here somehow. Before I started taking Mitotane I met with a doctor and nurse to discuss taking it, and so if I chose to do so I could give my consent. My only experience…
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I have had a lot of people tell me lately how well I am coping with everything, and that I am so positive. This is very kind, however not entirely true. Since October, life has been hard. Really hard, and the truth is I am not coping well, that is not to say I am…
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Six months ago today I had life changing and life saving surgery. A grapefruit size cancer was removed from my  abdomen – wow six months!!
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Six weeks to the day post surgery. Wow. It feels surreal. This was to be a big week full of appointments, but most importantly the appointment where I would be offered Mitotane, as I write this it is the day before meeting with the doctor, and at this point still I am undecided if it…
The ACC diary 