chemotherapy
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In December 2023, I was incorrectly advised to forgo taking my hydrocortisone for 24 hours, that lead me to have an adrenal crisis. This, along with the surgery and starting of chemo, bringing lots of trauma from my two years of IV chemo as a teenager, all caused me to lose a lot of confidence.By…
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Today marks two years since the surgery that changed my life. A lot has happened in those two years. Physically and mentally I’ll never be the same person because that day, the surgery changed me. How could it not. It changed me physically. I’ve never got back to my strength or fitness and mentally it…
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I am not watching big brother, but it’s clear that lot of people do. I’ve been noticing something that’s a talking point for many people, and that is Trisha, and her cancer diagnosis. What I’ve seen is many people saying that “all she talks about” is her having cancer. People are saying it in a…
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This week has been busy, and it’s not even over yet. One of the things I had to do, was go to London for a hospital appointment… are we surprised? Since I stopped the chemo in July, the functioning of my remaining  adrenal gland needs to be tested. Mitotane, the chemo I was on,…
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Another new year is upon us… 2025! Its also exactly a year ago since I wrote last years new year post. My plan way back in January 2024 was to reflect on the goals I had set myself to see how many I had achieved. 2024 didn’t go the way I had ever imagined but…
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So it’s (just over) halfway through the year. It’s been quite a long couple of days, with a trip up to London for a scan, and back again. in fact as I write this i am waiting for my scan and I am radioactive ☢️ Being blind as usual added a little extra complication to…
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So now I am six months through chemo, a quarter of the way, it has been hard but I have got here somehow. Before I started taking Mitotane I met with a doctor and nurse to discuss taking it, and so if I chose to do so I could give my consent. My only experience…
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I missed a Russell Howard gig last month, because I was just to unwell. I had been looking forward to it for a while, and worst of all it was something that my partner in particular had been looking forward to, he is one of her favourites. I wrote a post a while ago talking…
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It would be fair to say that since October, when I was diagnosed, I haven’t been particularly happy. Things have been hard and I haven’t really had a moment where I just relax and forget about everything that has been going on. Its not through lack of trying either, but things are just hard, cancer,…
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It’s a day to celebrate nurses and all the work they do. Let me tell you that’s a lot!!! I’ve spent a lot of time in hospital, over the past 12 years or so and having a good Nurse makes such a huge difference to your time in hospital. So from myself, and every other…
The ACC diary 