health
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The theme for this world cancer day is united by unique. Adrenal cancer is so unique that it’s not even given a mention in cancer circles. It’s rare 1 in a million people worldwide will be diagnosed annually. I have no interest in being unique, I just want to exist. I have seen people posting…
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Another new year is upon us… 2025! Its also exactly a year ago since I wrote last years new year post. My plan way back in January 2024 was to reflect on the goals I had set myself to see how many I had achieved. 2024 didn’t go the way I had ever imagined but…
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So it’s (just over) halfway through the year. It’s been quite a long couple of days, with a trip up to London for a scan, and back again. in fact as I write this i am waiting for my scan and I am radioactive ☢️ Being blind as usual added a little extra complication to…
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So now I am six months through chemo, a quarter of the way, it has been hard but I have got here somehow. Before I started taking Mitotane I met with a doctor and nurse to discuss taking it, and so if I chose to do so I could give my consent. My only experience…
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May, has been and gone now. It was NF awareness month and I fully intended on writing a whole post about living with NF1 and being informative and hopefully educate some people. But it hasn’t worked out that way. I’ve only written when I’ve been well enough, and when I’m well enough I usually want…
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It’s a day to celebrate nurses and all the work they do. Let me tell you that’s a lot!!! I’ve spent a lot of time in hospital, over the past 12 years or so and having a good Nurse makes such a huge difference to your time in hospital. So from myself, and every other…
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I have had a lot of people tell me lately how well I am coping with everything, and that I am so positive. This is very kind, however not entirely true. Since October, life has been hard. Really hard, and the truth is I am not coping well, that is not to say I am…
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Six months ago today I had life changing and life saving surgery. A grapefruit size cancer was removed from my  abdomen – wow six months!!
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Six weeks to the day post surgery. Wow. It feels surreal. This was to be a big week full of appointments, but most importantly the appointment where I would be offered Mitotane, as I write this it is the day before meeting with the doctor, and at this point still I am undecided if it…
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Something I have learned since being diagnosed with cancer and having my operation is that I am not very good at managing my expectations and I put a lot of pressure on myself to be busy and productive all the time. I came home from hospital and fully anticipated that I would be up ad…
The ACC diary 