hospital
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Today marks two years since the surgery that changed my life. A lot has happened in those two years. Physically and mentally I’ll never be the same person because that day, the surgery changed me. How could it not. It changed me physically. I’ve never got back to my strength or fitness and mentally it…
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What have you been working on? Well the thing I’m working on most and the thing I have been working on since July 2023 when I had a stay in a mental health hospital has been my mental health. It’s ongoing and it’s hard. It takes a lot of my energy, and a lot of…
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What are you doing this evening? Honestly I wish I could have something inspiring or enlightening to say. I wish I could make the first blog post in months one to get excited about, but truth fully I am doing nothing special. Today I had my blood test, that checks that my cancer markers are…
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This week has been busy, and it’s not even over yet. One of the things I had to do, was go to London for a hospital appointment… are we surprised? Since I stopped the chemo in July, the functioning of my remaining  adrenal gland needs to be tested. Mitotane, the chemo I was on,…
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All my hospitals are in London, and to be honest I’ve never actually taken advantage of being in the city. Usually just going to and from hospitals without doing anything else. But this time we had booked tickets to an exhibition. I had seen it advertised on Tik Tok and to be honest, would probably…
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The theme for this world cancer day is united by unique. Adrenal cancer is so unique that it’s not even given a mention in cancer circles. It’s rare 1 in a million people worldwide will be diagnosed annually. I have no interest in being unique, I just want to exist. I have seen people posting…
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So it’s (just over) halfway through the year. It’s been quite a long couple of days, with a trip up to London for a scan, and back again. in fact as I write this i am waiting for my scan and I am radioactive ☢️ Being blind as usual added a little extra complication to…
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So now I am six months through chemo, a quarter of the way, it has been hard but I have got here somehow. Before I started taking Mitotane I met with a doctor and nurse to discuss taking it, and so if I chose to do so I could give my consent. My only experience…
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It’s a day to celebrate nurses and all the work they do. Let me tell you that’s a lot!!! I’ve spent a lot of time in hospital, over the past 12 years or so and having a good Nurse makes such a huge difference to your time in hospital. So from myself, and every other…
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Six months ago today I had life changing and life saving surgery. A grapefruit size cancer was removed from my  abdomen – wow six months!!
The ACC diary 