surgery
-
In December 2023, I was incorrectly advised to forgo taking my hydrocortisone for 24 hours, that lead me to have an adrenal crisis. This, along with the surgery and starting of chemo, bringing lots of trauma from my two years of IV chemo as a teenager, all caused me to lose a lot of confidence.By…
-
Today marks two years since the surgery that changed my life. A lot has happened in those two years. Physically and mentally I’ll never be the same person because that day, the surgery changed me. How could it not. It changed me physically. I’ve never got back to my strength or fitness and mentally it…
-
Three weeks ago, I took Willow to the vets. She was due her annual vaccines, so, on a sunny afternoon, we took the short walk over and waited to be seen. When we were called in, as usual, Willow was a very good girl. But very nervous. Before the vet gave her the vaccines she…
-
This week has been busy, and it’s not even over yet. One of the things I had to do, was go to London for a hospital appointment… are we surprised? Since I stopped the chemo in July, the functioning of my remaining  adrenal gland needs to be tested. Mitotane, the chemo I was on,…
-
The theme for this world cancer day is united by unique. Adrenal cancer is so unique that it’s not even given a mention in cancer circles. It’s rare 1 in a million people worldwide will be diagnosed annually. I have no interest in being unique, I just want to exist. I have seen people posting…
-
Another new year is upon us… 2025! Its also exactly a year ago since I wrote last years new year post. My plan way back in January 2024 was to reflect on the goals I had set myself to see how many I had achieved. 2024 didn’t go the way I had ever imagined but…
-
So I made it! I talked in a recent blog post about there being an event that I wanted to attend, and that I was worried I wouldn’t be able to make it if I wasn’t feeling well, and I made it! So let me tell you about last weekend. I finally got to meet…
-
Six months ago today I had life changing and life saving surgery. A grapefruit size cancer was removed from my  abdomen – wow six months!!
-
Six weeks to the day post surgery. Wow. It feels surreal. This was to be a big week full of appointments, but most importantly the appointment where I would be offered Mitotane, as I write this it is the day before meeting with the doctor, and at this point still I am undecided if it…
-
Something I have learned since being diagnosed with cancer and having my operation is that I am not very good at managing my expectations and I put a lot of pressure on myself to be busy and productive all the time. I came home from hospital and fully anticipated that I would be up ad…
The ACC diary 