unwell
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What advice would you give to your teenage self? This almost feels like a question my therapist would ask. At 14 I had no idea that I had a genetic condition that predisposed me to tumours, I had no idea that I was developing an optic pathway glioma, a brain tumour that would eventually take…
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Today is World Cancer Day, and for me, it’s a day of reflection. It’s been two years and three months since the surgery that saved my life—and changed it in so many ways. But it’s also more than ten years since I finished chemotherapy for a brain tumour in my teens. I’m still here to…
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In December 2023, I was incorrectly advised to forgo taking my hydrocortisone for 24 hours, that lead me to have an adrenal crisis. This, along with the surgery and starting of chemo, bringing lots of trauma from my two years of IV chemo as a teenager, all caused me to lose a lot of confidence.By…
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What will your life be like in three years? That’s a hard question to answer when I live with a cancer that has about a 50% mortality rate. While it’s true that nobody knows exactly when they will die, it feels like quite a difficult topic for me. It’s something I’m working on. I find,…
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What is your favorite form of physical exercise? The honest answer is that I don’t know anymore. Pre cancer and pre the struggles with my mental health, I used to walk a lot, go to the gym, I loved my aqua aerobics class. I would go almost every day. But surgery, feeling so poorly and…
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What is your favorite hobby or pastime? I have lots of hobbies. I play ten pin bowling, I play a blind sport called showdown, I like crafting, climbing and researching my special interests and I love writing this blog  But when I’m depressed I lose sight of all my hobbies. This weekend I saw…
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I am not watching big brother, but it’s clear that lot of people do. I’ve been noticing something that’s a talking point for many people, and that is Trisha, and her cancer diagnosis. What I’ve seen is many people saying that “all she talks about” is her having cancer. People are saying it in a…
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It is a week ago today that I called off the match with little pup. I feel confident within myself that it was the right decision, but it is still a painfully hard one. I had to think with my heart and not with my head. I feel as though I am grieving a future…
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I missed a Russell Howard gig last month, because I was just to unwell. I had been looking forward to it for a while, and worst of all it was something that my partner in particular had been looking forward to, he is one of her favourites. I wrote a post a while ago talking…
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It’s a day to celebrate nurses and all the work they do. Let me tell you that’s a lot!!! I’ve spent a lot of time in hospital, over the past 12 years or so and having a good Nurse makes such a huge difference to your time in hospital. So from myself, and every other…
The ACC diary 