wellbeing
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May, has been and gone now. It was NF awareness month and I fully intended on writing a whole post about living with NF1 and being informative and hopefully educate some people. But it hasn’t worked out that way. I’ve only written when I’ve been well enough, and when I’m well enough I usually want…
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It would be fair to say that since October, when I was diagnosed, I haven’t been particularly happy. Things have been hard and I haven’t really had a moment where I just relax and forget about everything that has been going on. Its not through lack of trying either, but things are just hard, cancer,…
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I have had a lot of people tell me lately how well I am coping with everything, and that I am so positive. This is very kind, however not entirely true. Since October, life has been hard. Really hard, and the truth is I am not coping well, that is not to say I am…
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Six months ago today I had life changing and life saving surgery. A grapefruit size cancer was removed from my  abdomen – wow six months!!
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Six weeks to the day post surgery. Wow. It feels surreal. This was to be a big week full of appointments, but most importantly the appointment where I would be offered Mitotane, as I write this it is the day before meeting with the doctor, and at this point still I am undecided if it…
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Something I have learned since being diagnosed with cancer and having my operation is that I am not very good at managing my expectations and I put a lot of pressure on myself to be busy and productive all the time. I came home from hospital and fully anticipated that I would be up ad…
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I mentioned in my last post, talking about post surgical recovery that feeling the cold was a nice thing, and in fact a welcome experience after so long. I have previously spoken about how I had many symptoms that were plaguing my everyday life and were both causing me to feel self conscious but were…
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The ward was so very busy that day, the waiting room was full and people were rushing back and forth hurriedly trying to get things done in a timely manner. I’m not sure if it was the stress getting to me, but I felt like I was seeing all the goings on through a weird…
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It wasn’t long, and the appointment to meet with the endocrinologist was just days away. I was feeling slightly apprehensive, it just felt so uncertain, so unknown. It was scary to be honest. Id also begun to recognise since my appointment quite how often my heart would race. This wasn’t even when I exserted myself, sometimes I would just…
The ACC diary 