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Another new year is upon us… 2025! Its also exactly a year ago since I wrote last years new year post. My plan way back in January 2024 was to reflect on the goals I had set myself to see how many I had achieved. 2024 didn’t go the way I had ever imagined but…
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It has been a while, so I hope my writing is still up to scratch. I am so grateful to everyone who reached out to ask how I was because you were worried about me, or missed my writing. It didn’t go unnoticed. So, where have I been? Well…. In July I had a breakdown.…
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My scan results are back, and it’s positive news. ….and relax 😮💨
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So it’s (just over) halfway through the year. It’s been quite a long couple of days, with a trip up to London for a scan, and back again. in fact as I write this i am waiting for my scan and I am radioactive ☢️ Being blind as usual added a little extra complication to…
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Something I used to love and honestly did at least a couple of times a year before I got diagnosed was to o to concerts. I love everything about them, the atmosphere you get at a gig is unmatched. I was lucky enough to go to a gig last week, I saw Girls Aloud. A…
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So now I am six months through chemo, a quarter of the way, it has been hard but I have got here somehow. Before I started taking Mitotane I met with a doctor and nurse to discuss taking it, and so if I chose to do so I could give my consent. My only experience…
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So I made it! I talked in a recent blog post about there being an event that I wanted to attend, and that I was worried I wouldn’t be able to make it if I wasn’t feeling well, and I made it! So let me tell you about last weekend. I finally got to meet…
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May, has been and gone now. It was NF awareness month and I fully intended on writing a whole post about living with NF1 and being informative and hopefully educate some people. But it hasn’t worked out that way. I’ve only written when I’ve been well enough, and when I’m well enough I usually want…
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I missed a Russell Howard gig last month, because I was just to unwell. I had been looking forward to it for a while, and worst of all it was something that my partner in particular had been looking forward to, he is one of her favourites. I wrote a post a while ago talking…
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It would be fair to say that since October, when I was diagnosed, I haven’t been particularly happy. Things have been hard and I haven’t really had a moment where I just relax and forget about everything that has been going on. Its not through lack of trying either, but things are just hard, cancer,…
The ACC diary 